ANDROGEN INSENSITIVITY SYNDROME | |
- (AIS) Tons and tons of medical information from the National Institute of Health. | |
drkoop.com: Medical Encyclopedias - | |
(CAH) Detailed medical info on congenital adrenal hyperplasia. | |
- (All) Medical procedures have often been used as analogues for childhood sexual abuse (CSA) and have been seen as opportunities to observe children's memories of these experiences in a naturalistic context. | |
Study finds children treated for intersexuality | |
develop psychological disorders Despite the sex assignment, genital organ correction soon after birth, psychological counseling of parents and intensive psychotherapy of children, general psychopathology developed in all groups.... The study concludes with a call for a reconsideration of the sex assignment in children both with ambiguous external genitalia and testes and ovotestes." Includes feedback area with comments from many intersexed folks. | |
Texas Department of Health-Congenital Adrenal Hyperplasia | |
- (CAH) Congenital Adrenal Hyperplasia: A handbook for parents. Lots of good info, but overemphasize "correcting" it with surgery and leading a "normal life." | |
Chicago Tribune Dissects Intersex Issues With Finesse - In the June 20 issue of the Chicago Tribune staff writer Louise Kiernan performs an important service: educating the public-at-large about medical practices that arbitrarily assign a gender to children who are born with "ambiguous genitalia," often without consent of the parents. | |
"Discover"ing Intersex People - The January edition of Discover features a lengthy, well-written article about intersexuality by Emily Nussbaum. It details how being born with ambiguous genitals affects the person, how families react and procedures followed by the medical community. | |
Intersex People Speak to APA - The Intersex Society of North America (ISNA) hosts a hospitality suite, at the American Psychiatric Association (APA) convention. | |
Personal Home Pages | |
Abnormal Sex Differentiaton - This site will help parents and patients understand intersexuality and the challenges that accompany syndromes of "abnormal" sex differentiation. From the Johns Hopkins Children's Center. | |
Check for Mutilation on Return - An exhibition by South African artist Stuart Barnes which examines the medical discourse around intersex infant surgeries. | |
Cushing's Support and Research Foundation - Providing information and support for Cushing's Disease and Cushing's Syndrome patients and their families. | |
The Genetic Interest Group - UK-based organisation that aims to increase the public/government profile of genetic conditions. The AIS Support Group (UK) is affiliated to GIG. | |
Genetic Org - Klinfelter's support site. Designed to provide support and education for families and professionals dealing with these genetic conditions, including sex chromosome variations 47XXY, 48XXYY, 48XXXY, 49XXXXY, and 46XY/47XXY mosaic. | |
GIRES: The Gender Identity Research & Education Society - Registered UK charity that sponsors research and education on gender identity. | |
Guide to Medical Intersexuality Vocabulary - Includes such bitterly funny entries as "Ambiguous Genitalia: Genitalia that refuse to declare their sex to doctors--no doubt on the principle that under interrogation by the enemy you should give only name, rank, and serial number." | |
Hypospadias - Why it happens, what it is, what to do; see photos of hypospadias and contact others with it. Discusses androgen insensitivity, testicular feminization syndrome, development, and even ISNA. | |
IFAS_Homepage.html - The International Foundation for Androgynous Studies has been established as an incorporated body to advance the health, well being, basic rights, social equality and self-determination of those persons who are physically or psychologically androgynous. | |
Intersex Society of North America - ISNA is a peer support, education, and advocacy group founded and operated by and for intersexuals: individuals born with anatomy or physiology which differs from cultural ideals of male and female. | |
Intersexuality In Sports - Information about the condition in amateur and Olympic performance. Includes a human rights perspective. | |
The ISNA Intersex FAQ - Frequently (or infrequently) Asked Questions about intersex people and the Intersex Society of North America | |
Klinefelter's Syndrome Report - A special short paper done as part of the Student Genome Project. | |
MRKH Listserv and Online Support Group Homepage - A discussion group for XX females with ovaries but lack of vaginal, and often uterine development. | |
Sex Police - The biology of sex is being hotly debated, as parents, doctors and researchers reevaluate what it means to be male and female. This is an article about 'gender reinforcement' surgery by a subscriber to the US branch of the AIS Support Group. | |
The Sex That Dare Not Speak Its Name - A long article by Emily Nussbaum in the current issue of Lingua Franca details the rise of the increasingly successful intersex social justice movement, its alliances with humanists and social scientists in the academy, and growing pockets of change within the medical community. | |
UK Turner Society - Contains support, information on hormone replacement therapy for folks with Turner's, health issues for folks with TS, and personal stories. |